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PhD research: life storytelling in palliative care

I am a PhD candidate at La Trobe Uni who partnered with Eastern Palliative Care Inc. (EPC) to sponsor this industry funded research into EPC's highly successful Biography Program. Below are various research outputs, a podcast and presentations I have given, if they are not live, they are a post presentation recording. The most recent is at the top.

There is a Bonus Episode of the podcast, of Karly reading selected excerpts of research poetry ( I & They Poems) and interview quotes included in my PhD Thesis titled Witnessing the Theatre of Life: The EPC Biography Program and Storytelling in Palliative Care.

Please note, these quotes included in the thesis for a variety of reasons and do not necessarily represent the totality of the Biography Program or my thesis. I've included them as examples of the research poetry forms & to demonstrate how sections of the thesis may be performed.

Act One

Time: 0.0 - Interview Excerpt from Storyteller Flossy: The Biography Program Bringing Me Back to Who I Am

Time: 0.30 - I Poem Excerpt from Volunteer Biographer Greg: Facilitating Conversation

Time: 1.25 - I Poem Excerpt from Storyteller Dorothy: Diagnosis

Time: 2.00 - Interview Excerpt from Carer Patricia: The Biography Program as Spiritual Connection

Time: 3.00 - Interview Excerpt from Carer Mark: A Difficult Death

Time: 3.45 - Interview Excerpt from Volunteer Biographer Lauren: Stories of Illness

Time: 4.20 - Interview Excerpt from Staff Member Lucy: Listening

Time: 4.50 - Interview Excerpt from Volunteer Biographer Bernard: How We Speak

Act Two

Time: 5.30 - I Poem Excerpt from Storyteller Chris: What it Means to Tell My Story

Time: 7.38 - I Poem Excerpt from Volunteer Biographer Greg: Facilitating the Biography Program Process

Time: 8.56 - Interview Excerpt from Volunteer Biographer Kevin: Why Volunteer

Act Three

Time: 9.28 - Interview Excerpt from Volunteer Biographer Bernard: The Storyteller’s Voice

Time:12.18 - I Poem Excerpt from Carer Diane (Version Two)

Time: 12.36 - They Poem Excerpt from Carer Diane (Version Two)

Time: 13.06 - I Poem Diane: Carer to her husband, William

Time: 16.36 - They Poem Carer Diane: William/He/Him

Time: 19.00 - I Poem Excerpt from Storyteller Peggy: Friendship

Time: 19.30 - Interview Excerpt from Volunteer Biographer Bernard: Storyteller Transformation

This is the pre-recording of a presentation I gave at the Australian Historical Association in July 2022. A presentation of the uncommon experiences of the Biography Program, that have contributed to how the program now operates. 

Biography writing in palliative care & the Listening Guide method in motion. A presentation to the La Trobe community in 2022.

The Listening Guide Method is the primary analysis method used within the research.

Question / Answer video from early in the PhD process. 2021

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