PhD research: life storytelling in palliative care
I am a PhD candidate at La Trobe Uni who partnered with Eastern Palliative Care Inc. (EPC) to sponsor this industry funded research into EPC's highly successful Biography Program. Below are various research outputs, a podcast and presentations I have given, if they are not live, they are a post presentation recording. The most recent is at the top.
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There is a Bonus Episode of the podcast, of Karly reading selected excerpts of research poetry ( I & They Poems) and interview quotes included in my PhD Thesis titled Witnessing the Theatre of Life: The EPC Biography Program and Storytelling in Palliative Care.
Please note, these quotes included in the thesis for a variety of reasons and do not necessarily represent the totality of the Biography Program or my thesis. I've included them as examples of the research poetry forms & to demonstrate how sections of the thesis may be performed.
Act One
Time: 0.0 - Interview Excerpt from Storyteller Flossy: The Biography Program Bringing Me Back to Who I Am
Time: 0.30 - I Poem Excerpt from Volunteer Biographer Greg: Facilitating Conversation
Time: 1.25 - I Poem Excerpt from Storyteller Dorothy: Diagnosis
Time: 2.00 - Interview Excerpt from Carer Patricia: The Biography Program as Spiritual Connection
Time: 3.00 - Interview Excerpt from Carer Mark: A Difficult Death
Time: 3.45 - Interview Excerpt from Volunteer Biographer Lauren: Stories of Illness
Time: 4.20 - Interview Excerpt from Staff Member Lucy: Listening
Time: 4.50 - Interview Excerpt from Volunteer Biographer Bernard: How We Speak
Act Two
Time: 5.30 - I Poem Excerpt from Storyteller Chris: What it Means to Tell My Story
Time: 7.38 - I Poem Excerpt from Volunteer Biographer Greg: Facilitating the Biography Program Process
Time: 8.56 - Interview Excerpt from Volunteer Biographer Kevin: Why Volunteer
Act Three
Time: 9.28 - Interview Excerpt from Volunteer Biographer Bernard: The Storyteller’s Voice
Time:12.18 - I Poem Excerpt from Carer Diane (Version Two)
Time: 12.36 - They Poem Excerpt from Carer Diane (Version Two)
Time: 13.06 - I Poem Diane: Carer to her husband, William
Time: 16.36 - They Poem Carer Diane: William/He/Him
Time: 19.00 - I Poem Excerpt from Storyteller Peggy: Friendship
Time: 19.30 - Interview Excerpt from Volunteer Biographer Bernard: Storyteller Transformation
This is the pre-recording of a presentation I gave at the Australian Historical Association in July 2022. A presentation of the uncommon experiences of the Biography Program, that have contributed to how the program now operates.
Biography writing in palliative care & the Listening Guide method in motion. A presentation to the La Trobe community in 2022.
The Listening Guide Method is the primary analysis method used within the research.
Question / Answer video from early in the PhD process. 2021